Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
http://www.paklinks.com/gs/media/eid/eid24.gif
Eid Mubarik to all here at paklinks
All prayers and best wishes for him..
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
May Allah give him the best!
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
You are reading this thread for more than one year and I am realy encouraged here. It is my 6th year with Jawad Pasha. A duty for whole night and 24 hours look after of a 27 year old young man who is unable to speak a word,can not eat,drink ,move or even point out any way any of his need. But on the other part he is wondrfully recovered to show his consciousnees and general health. When I see the condition of other Persistent Vegetative State or Minimally Conscious State patients in the world I am always thankful to God for his great mercey upon me and Jawad Pasha. It is sure because of the prayers of you people and others and please help me by preying for me, Jawad and Pakistan. Another requeat for one here who knew computer and net working better to work on the link given below to make it better.If a doctor can do this this will be more better.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
May ALLAH SWT give shifa to Jawad. Ameen
my sincere prayers with him.
May ALLAH SWT give shifa to Jawad. Ameen my sincere prayers with him.
Thank you my daughter
May ALLAH gives health ro your child. ameen.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
May God give him the courage to pass through this tough time and also appreciate what you are doing for him. God's reward will be bountiful...
i hope he will spent his life as a normal person ...............
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Thanks to you all. I have a wonderful news. There is another Persistent Vegetative State just 17 years old Muhammad Hussain Kakar. He is located in a village near Pishin away from Quetta Pakistan. He was injured more than one year ago perhaps 18th of last Ramdhan. Somebody told me about him and I contacted that family and told them all which I learnt during last Five years and remain in contact with them on daily bases and did what ever was possible and I am very happy that with a time less than 6 months he has started responding , smiling , laughing, a liitle eating and some minor moving. This is more than any western modern rehabilitation intitute. I am happy that Jawad Pasha is able to help others in this way.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
I am here seeking more prayers for Jawad Pasha,me and my family. I believe your prays can do a lot for us.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Jawad Pasha is improving, very slowly but visible.
On November 14th this year
There was 'Nikkah' of his only sister.
There were tears one day before in his eyes when sitting among all.
But tears are there sometimes in his eyes so we can not count them on any account.
Even there were no tears when his younger brother Ubaid Pasha was kidnapped and killed.
When her sister came close to meat him ,
Suddenly tears started comming from his eyes.
Please continue praying for us.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Congratulations on the nikkah of your daughter and Jawad's sister. May she have a long and healthy life with her husband and his family. May they prosper and remain in the care of the Almighty, ameen!
Jawad is fortunate to have family that loves and cares for him so much.
May Allah reward you for your perseverance and your faith in the Almighty's ability to heal all wounds.......
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Thank you very much Muzna
This is for you to see.
Sorry failed to copy immage
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Another Eid
Eid Mubarik To You all
Please keep praying for us. We are in real struggle. Mother of Jawad Pasha is on delyses agian after failure of her tansplanted kidney (Some six year ago).
Have a news to share
PVS misdiagnosis raises questions
This is what we are ahead of that already.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Do you know today the Dcecember 3rd is
International Day of Persons with Disabilities
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Muzna thanks . Perhaps you can see now.
The code was copied to your clipboard. Now simply paste in your post. (Ctrl-V)
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
It is added for record.
Saturday, December 19, 2009
** What to do when your loved one is diagnosed as Persistent Vegetative or Minimally Conscious State ? **
My this post is only for those who become Persistent Vegetative State or Minimally Conscious State in result of ahead trauma, It can be supposed for Locked in Syndrome but their injury is little different and I am not a health care personal or a doctor. What I am going to advise that is only a sharing of my personal experiences and study of different cases. I am also sorry for my poor English.
It often takes one month approximately to diagnose one in a condition called Persistent Vegetative State or Minimally Conscious state because of different reasons but doctors feel the position much early but the condition of the patient due to severity of ‘brain shock’ is a hurdle to diagnose. However most of the doctors arrange a little physiotherapy in all sorts of coma or a coma like situation. Here starts the liability of the family and friends of the patients. First thing to tell is that they should be ready for a very long time struggle and should have to make long terms plans.
First important thing is to tell them that they should not care anyone saying that there is no cure for these patients and second thing to not to care is of any version of saying of anybody about their consciousness. In my view most of them are conscious but they can not communicate due to loss of motor function and weakness due to that severe brain shock.
It is much better to bring them home when they are a little physically settle but that is also a great task to make sure a round the clock care of these patients and to arrange their rehabilitation work and their exercises. It should be kept in view very seriously that they should must be very afraid due to their total disability but they should also very fond of listening and also some viewing to their loved ones and close ones.
After physically improvement the most important work is to arrange their rehab plan. Every muscle of their body from face to foot need attention and it is not possible for physiothrapists only. Their caregiver should have to take part in this long term job and even kids can take part in this task. when I was involved in this struggle for my son Jawad Pasha I knew nothing and could arrange only simple physiotherapy for first one and a half year but I am always thankful to one Dr Carina Eksteen of Pretoria University(South Africa) and others who guided us when they came Pakistan to help 2005 Earth quake victims. My son was unable to hold his neck till then after the special exercises they told it took a year to improve his neck holding. So it is very necessary to start it soon and it is multiple direction job.Guidance from qualified rehab persons is very important and everyone available should be ready to contribute it.
Other very important thing is to take care of their psychological condition. They should be given hope and treated with love. Everyone should be careful while talking before them and keep in mind that they may be understanding all which one is saying. They are in need of attention and they want to join you either they can communicate or not.
A very important advise is about moving them. Medical advise about changing of their side after every two hours is very good but that is almost according to the hospitals position. A little movement of arms,legs and neck is very necessary after every 20-30 minutes even if they are sleeping. Bringing them out of their rooms is also very important and it should be extended as much as possible. I am myself willing to arrange a horse ride for my son but could not arrange yet.
Another success we achieved is to control their Seizures/fits. We simply try to divert their attention to somewhere else at start of these Seizures/Fits and than we try to find the reason of these fits which may be pain,Feeling cold or hot,hunger or thirst,tiredness or some other psychological reason and we are almost successful to control most of the such seizures. The main issue of these patients is general heath care and there are almost no medicines which can be used for their brains and up to now nothing is known successful for their recovery but hope in near future technologies like deep brain stimulation Therapy or stem cells could help these patients.
I am sure that many of them can improve and recover due to personal attention and care and soon there will be no need of thinking for many of them to remove their feeding tube or to stop their feeding.
Re: Pakistan a brain injury Persistent vegetative state patients Jawad Pasha
Have you seen "the diving bell and the butterfly jar" It is a picturisation of a novel written by a French man who also suffered from "locked in " syndrome?
Very moving. I hope your son all the best.