Asalamualaikum
I am in a desperate need of help. My mom has been ill for 2 years now. She is a diabetic patient but her sugar level is always under control and its not really affecting her health. She weighs only 90 pounds and very petite. She is always complaining about pain in her body and according to her doctor it’s nothing but muscle pain. She has used up 6 tubes of icy hot/bengay in just a month but they don’t help. The pain is so intense that she cries.. I know my mom she would never cry for minor ache. She also feels some kind of burden on her head, eyes, and shoulders. Since last year, she started having a hard time walking, turned out she was deficient in Calcium and Vitamin D, been taking the supplements for over a year now and they are doing nothing for her. She also got Glaucoma and was operated for that. After that she keeps getting blood behind her retinas, basically her eyes are not healing at all, so the surgeon has stopped the treatment for a while. Her speech has also become slurred. Most of the time, you can’t understand a word she’s saying but there are times when she would speak fluently ( for a min or 2). She is so embarrassed of it that she would only talk when its necessary. When she can’t get the words out she starts crying …. It is so sad . I haven’t seen my mom smile for a long time now.
Last month, she was taken to the ER because she couldn’t breathe and was extremely dizzy. They did CAT scan and chest X-rays on her. They came out just fine. Later, I insisted to do an MRI on her. It came out fine too and the doctor discharged her. I wanted to slap the doc so hard… My mom was not even able to sit straight and the doc was saying she might be dizzy because of Sinus… Ya right.
Later, her physician said it might be just psychological but then sent her to aNeurologist. Now this neurologist is saying that she has moderate atrophy in her cerebellum – cerebral degeneration. It’s a rare kind of disease caused by shrinkage of Cerebellum resulting in losing balance. The disease is either genetic ( we didn’t have anybody in our family with this disease .. .never heard of it before) , or she took some medication for a longgg period of time ( approx 10 -15 years ). The only medication she ever took was homeopathic medicine for her asthma … She was always scared of medications so she used to go to this homeopathic doc back home. So the Neurologist recommended to do tons of tests on her that we have already got done.. All the reports have come out her physician is saying that she didn’t see anything unusual in her reports. She has an appointment with her neurologist next week and I don’t know what’s going to happen.
The Neurologist was not helpful at all .. She basically did not give us any hope… I been lying to mom that she is gonna be fine and there’s a treatment for her disease… But the Neurologist actually prescribed her a walker. I researched online and whatever I read was quite depressing either ..
WE also talked to Alims… Some says its nothing its just stress that’s causing all the diseases.. Some says its black majic that one of our really close relatives has done on her .. but they say the magic has gone and its just the “asar” that’s left… Some says its just “balain” and kisi buzrugh ki narazghi … I even talked to this Hindu lady .. ( yes im that desperate) .. She said that it’s some woman from our dad’s side and she will tell us the name once she does pooja. I don’t know if its significant here … but my mom has been seeing this headless man for more than 25 years. ( 8 -9 years ago My mom saw the face of that man and she said it was actually our father’s face) She says he comes to her bed, gets on her chest and stays there for good 15 months. She cries , tries to call us but the voice does not come out. She also saw a dog in her bedroom last week and when she tried to get up he started barking. … one more thing .. I saw some of my mom’s really old pics crossed out.. I don’t know why only she was crossed out in all the pics and I never asked them who did this…. And I ‘m not sure if its important or not … The pics were at my Khala’s place ( who’s also our chachi)… and I can never imagine her doing anything bad to our mom..
My mom does not even have any insurance.. But we are doing our best to get her cured… There’s nothing that we didn’t tryyy …. You know its extremely hard when u see ur loved one in this condition and you can’t even get her any medicine… they wont treat her if they don’t find out the cause.. and God knows when will this happen…. I feel so helpless … My mom was always so active and quick in doing all the household chores… she never let us do anything before … Even in this condition .. when she cant get to the kitchen without falling multiple times… She would squeeze me fresh orange juice when ver I come home.. She tries to be done with dinner before I get home… You know when people complain about their cancer or whatever disease they had and they had to go through this and that … I feeeel like crying that how nashukray you could get … at least you got cured.. my mom didn’t get any medication for over a year!!!
I know guys the post is extremely long .. but I seriously need help .. .If you know anyhitn at all about this disease, treatment , doctors, any exercises, any adiet, Quranic duas,Khatams for Shifa, Alims… anything at all … that could help my mom in any way please let me know … My mom is only 52 and its extremely hard for me to see her in this state .. I am not strong at all .. its very hard for me to pretend everything is okay and put on a fake smile in front of my mom and my lil sis …and its getting
Thank you very much
