.
No one can ever imagine such a healthy and active child would be going through this.. Sajal baji I am not an expert, but if you remember Sift (Maria baji's daughter).. she was suffering the same thing and her parents opted for surgery considering the fact that catheterization wasn't used widely.. she had a surgery when she was only two months old. I hope things have been changed in two yrs and catherization must be the one of the best choice available, if you think she is too young for surgery, trust me I have seen babies having surgery so dun worry for this. Have faith in Allah and do the online search along with getting in touch with doctors for both surgery and catheterization.
by the way I am just curious, doctors must have diagnosed this right away when she was born, as one of the symptoms for this is the pre-mature babies, but Mashallah she was born healthy and on time.
just wondering how come they came to know this after two yrs?
Dun worry, Inshallah everything will be fine soon. :-)
I would suggest you start by using one of the online medical web sites (webmd) and then find out about research on the various methods that may have been used recently and perhaps you can find some information there.
It is very sad to hear about your kids case that but I am guessing its best to have it taken care of early on in life.
.
[QUOTE]
*Originally posted by hmcq: *
I am guessing its best to have it taken care of early on in life.
[/QUOTE]
^ not necessarily.
SAJAL, as a part of a class project on cardiovascular mechanics,I did some research (mainly computational) on kids with CHD ..even though our topic was Tetralogy of Fallot, I did get some exposure to PDA as well. We had the opportunity to work with a very talented pediatric surgeon /professor. If you are interested I can give you his contact info etc.
edit: Please check your PM.
2 good to be true
I tried to send u a pm yesterday but your inbox was full.
Thanks for the info u pmed me.
Sajal,
My heart goes out to you. All I can do is pray and that I will. Inshallah everything will be fine.
I have asked around and apparently cathetirization may be new but reviews are good.
Tough decision. May Allah guide you well.
Muzna
thanks so much. :) That helped a lot.
Looks like we are going with catherization.
I just need all of you to keep us in your prayers. IT's much
simpler than surgery and hopefully it will take care
of the problem and inshALLAH she will live a happy/healthy life. Ameen.
I hope everything goes well for you guys, keep us updated on her progress please.
Sajal: InsaAllah everything will be ok. It is hard but being parents sometimes people have to go through moments like this. Be strong. Allah will take care of you are your lil princess (Ameen). Keeps us posted please.
if she's already two years old when it has been detected i guess it isn't that severe as it can be
**
Sajal 
Insha’Allah everything will go alright, don’t worry. Have faith in Allah, He’ll take care of you and your little one Insha’Allah. Our duas are with you. After the catherization, do let us know how it went. She has our prayers, so try not to worry - Insha’Allah everything will go okay.
InshAllah the procedure will be a success. Hang in there. And do post the good news soon.
Re: Patent Ductus Arteriosus
as you already stated what a PDA is, i can skip that....but once again i wonder how come it took 2 years to diagnose?? perhaps it wasn't that big a problem. Did you take her to her regular check-ups? if yes, then i wonder how they missed it, cuz when listening with a stethoscope you can hear it quite easily (if it isn't that small).
Of what I know, when they diagnose it -let's say- in the first year, they wait till it closes by itself or use some contracting drug.
anyway, as for the treatment:
yes, surgery is a bit assuring, but it is considered a major op, but then again they have yrs of experience with the procedure and just put a clip there. With catheterization it also depends on the experience of the radiologist.
I personally would opt for surgery, cuz in both procedures the kids will put into sleep, and with surgery you're sure the problem will surely be solved..............and don't worry about the scar: children heal very quickly. Then again, if the docs and you decide catheterization is good, then why not.
GtG: for the sake of clarity: prematurity is not one of the symptoms for this, but one of the major causes.........you mixed up the causal chain :~)
nescio
I was hoping u would reply.
It took us by surprise too. I took her for immunizations, etc regularly plus every time she would get sick I would run to her doc. Plus she
has been in the emergency room a few times when I was visiting out of state
and no one there noticed it either.
Let me ask u this. When u say the person who does it should be
experienced enough how many years exactly would u say is enough??
The surgeon we are talking to has been doing
this particual procedure for the last five years. At first I didn’t think
that was long enough but we heard good reviews on him.
I just want to thank everyone for their prayers.
Sajal, with radiology, often they use the latest and most advanced techniques.....an advantage being that they are up to date and are potentially better than the classic procedures...however, not all clinics have enough experience with such techniques...and as time goes by more and more radiologists will get better and better with such procedures. I would not discourage the radiology procedure, because after all it is kids like ur daughter who will give them the experience, and moreover, nowadays all things are strictly tested and controlled.
With surgery, I guess every thoracic surgeon will see the PDA as a standard procedure.
All in all, I can say that both procedures are equally well suited to this case.....one more indication for that being that the docs left the decision upto you two without clearly stating what their choice would be: this shows that they think both are equal. I guess, you and your husband should select the one which you feel most comfortable with, because medically i don't think there is much between them at the moment
i did a quick search in the medical literature, thisis what i got: This is an article from 2001 and already then they were showing good results
J Interv Cardiol. 2001 Feb;14(1):33-6.
Early experience with the Amplatzer ductal occluder for closure of the persistently patent ductus arteriosus.
Ebeid MR, Masura J, Hijazi ZM.
University of Mississippi Medical Center, Children's Hospital, Department of Pediatric Cardiology, Jackson, Mississippi, USA. [email protected]
Using an Amplatzer duct occluder, 106 patients (weight 21 +/- 18 kg) underwent an attempt at catheter closure of a persistently patent ductus arteriosus (PDA). Their age ranged from 22 days to 48 years. The PDA measured between 1.2 to 8.1 mm at its narrowest diameter. The device was successfully implanted in 105 patients. The immediate closure rate was 70% and gradually increased to 100% at 1-month follow-up. There was no clinical evidence of hemolysis and no incidence of device embolization or bacterial arteritis. Doppler evaluation showed no evidence of aortic arch or pulmonary artery obstruction. The device, which is currently undergoing multicenter clinical trial in the United States, is proving to be a safe and effective device for closure of the persistently PDA.
Sajal baji, Insh'Allah everything will go well with the surgery.
I will keep her in my prayers.
May God help your child
Re: Re: Patent Ductus Arteriosus
[QUOTE]
*Originally posted by NeSCio: *
GtG: for the sake of clarity: prematurity is not one of the symptoms for this, but one of the major causes.........you mixed up the causal chain :~)
[/QUOTE]
Nescio.. As I mentioned earlier in my post that I am not an expert so dun take my words, my reply was based on what I heard or observed in family. Prematurity, a reason or a symptom, the whole point was you can diagnose it when a child is born.
Sorry!!!
PS: Sajal baji, she is always in my prayers, Have faith in Allah. :-)