Any Tips and Tricks ?
check this site..there r many at net u can search..
I’m not sure what u mean about tips an tricks. Is it about helping to deal with your own or with someone else’s? Or do you need “diagnoses” in recognising what epilepsy is and its types?
One thing i will say is get the best specialist diagnoses (as many as you can) and support available because I personally had to go through with this whole epilepsy phase put on medications go through tests and all the rest after i became seriously ill in pakistan. My father refused to believe I had such a thing and eventually after more tests and more consultations and a time lapse of more than a year it was finally concluded that in fact i had no such thing. It was just as well i didn’t follow the medication regime strictly in the first place 
but the psychological blow for that time was huge. 
Rhea .. all i can say that u r pretty lucky … 
.. well.. its sumthin like erm i’ve been through it or more like goin thru it again .. had to take the long medication period i.e. for three years.. thats a pretty long time isnt it!!! .. but they r back now.. as you mentioned about ur father, my entire family refused to accept it that i hav it.. even if i was on medication n all.. they still think its sumthin that wud go away … i had all the tests they require like EEG n MRI n what not.. n Doctors think its sumthin i have to deal with all my life now.. and as long as am on medication.. m normal as can be except the side effects… i was just wondering how to live with it.. i mean i m living right now ofcourse 
.. its just that i hav a job.. soon to be married … so .. life is kinda scary for me rite now.. i was just wonderin wut advices i can get on the topic..
Degas.. thanks for the link … i havent still check it thoroughly.. but trust me i will…
Thanx Aleezay i think i am lucky
I’ll get back to you in more detail later but just quickly, I was told that people can usually tell or feel when the fits are going to occur like in 5 minutes later or something and so they can try to control the seizure to some extent. For example in one of the information leaflets i was given i read one guy would talk to himself and calm himself and by doing that he could control the size of the seizure but i have to say I never felt an oncoming seizure and what was really frightening for me was when they occurred it was when i was asleep. The other thing is I felt very very tired afterwards (like the whole day) and would feel very sleepy but aparently its not good to sleep because it can cause more fits. ??!!
Anyway EEG etc is good but I think the main thing is usually how often and when the fits happen. Just from my EEG they said I was prone to epilepsy but when my neuro-specialist took the histroy i.e. the few seizures i did suffer from were so spaced out (months actually) and they happened at time i was very seriously ill and weak and the fact they haven’t occurred again, it was all too mixed up to conclude that it was epilepsy. I don’t know where u r located but i had my first “diagnoses” by a arrogant pakistani doctor in pakistan who insisted my problem was I couldn’t come to terms with the fact I had epilepsy 
so in my view pakistanis rely on the computer machines reports than actual prognosis.
I don’t recommend this but my way (when i was told initially) was to not take medications just to see how long i could last without them. I was supposed to take 4 tablets a day and i usually went for a few weeks at a time without them Nothing happened during the time didn’t take them but i didn’t stop taking them from time to time until I was told there was nothing wrong. So you can never be too sure. I think if you don’t believe you have epilepsy, you probably don’t!
General advice to make life easier would be to have a routine and to stick to it. Make sure others ar aware of your routine too. Take plenty of time to rest yourself and don’t over rush or burden yourself. Even now I sometimes feel very tired and weak at times so I stop what i’m doing and sleep it off. I put it down to stress
Thanks for the reply Rhea...
now i see it.. my case history is very differnet from urs... i used to hav fits when i was a kid.. like around 4-6 yr old.. i had a course back then as well.. for 2 yrs. .. but at that time they say that kinda epilepsy may wear off when u grow old... but back when i was around 20 i had another siezure n i fell off a chair then ... so gone thru EEG n MRI n they said epilepsy is positiv plus i had a history as well... took another 3 yr course of medication .. even if i skipped days n sumtime weeks... i never had another siezure durin that time... last yr i finished my course in january .... but just dropped off from the chair again at my work place... that was definitely a siezure...but as i thought that i was cured n stuff i never thought of it as one... had couple more in next few months n m on medication now.. in my case i never had any warnings before siezure so sadly i cant even control them without my medication
Leez,
I can't offer any advice. I can (and did) pray that may Allah Mian grant you complete health jald se jald. Aameen.
Khush rahein,
:(
What can I say, just like Khanz bhai
I ll pray and IsnshaALlah U ll get better
I agree with P.textus and khan. :)
Just out of interest, have you had your blood sugar levels monitored? critical levels can have the same effect as epilepsy.
Thanks everyone …
but to tell u the truth.. i mean i dont want to sound rude but i havent posted that here to seek sympathy n all.. i m living quite a normal life with my frends n family n all … most of them dont even kno i hav this condition.. i was just wondering if any one hav a useful advice to deal with it or if they were livin through the same thing… I do appreciate everyone’s concern though .. n i do love u all… 
Rhia: Yup had those levels monitored every month during my course.. it wasnt that …
Leez, i personally think that there's no harm in trying different alternative therapies as well.. i have this book here with me these days that i brought from the library..its called nutrition almanac fifth edition..by lavon j. dunne..its a very helpful book..so i am listing all the information listed here on epilepsy.
Epilepsy related therapies:
nutrients: calcium, magnesium - 1g each before bedtime and half the dose 12 hours later, in citrate, gluconate, or chelated form, moderates the nervous system.
herbal therapy: valerian - tincture, one dropperful in water three to four times daily, a mild relaxant and depressant.
scullcap-1 tsp tincture three times daily for petit mal.
homeopathy: take remedy according to symptoms after seizure has expired: aconite, belladonna, chamomilla, ignatia, zinc
aromatherapy: rosemary- small doses may be helpful, use only under the supervision of an aromatherapist.
ayurvedic medicine: saraswati churna 200 mg, brahmi 300 mg, jatamansi 200 mg, punarnava 300 mg- mix and take 1/4 tsp twice daily after meals.
chinese medicine: sweet flag root , bamboo juice
chiropractic: consult a qualified practitioner.
bodywork: massage, shiatsu, deep tissue massage, movement therapy, reflexology
mindbody therapy: biofeedback- learn to produce slower brain waves through controlling the autonomic nervous system, hypnotherapy
Hope it helps :-)
Apart from taking things easy and not stressing yourself out as I mentioned earlier as well carrying on with your prescribed treatment, I think it will help if you can generally find out out what is most likely to trigger your seizures and then avoid them as much as possible. I still have little jolts from being exposed to flashing lights. I also use the computer alot, i don’t know how that affects directly but I get tired out quickly so i need to cut down on that. I don’t watch tv for long either (flashing lights).
Here’s a list I found from the net:
However, some environmental and internal factors that may initiate seizures in a susceptible person include:
alcohol
strong emotion
intense exercize
flashing lights or loud music
illness or fever
lack of sleep
stress
menstrual period
hormonal changes
drug use
missed medication
poor nutrition
emotional stress
extreme fatigue
low blood sugar
http://www.epilepsy-cf.org/epilepsy_facts.htm
Again try some kind of relaxation excercises or meditation i heard they help to remove stress which could be a trigger.
some mor links i found informative: Health | Latest News & Updates | BBC News
http://www.epilepsy.dk/Handbook/Living-with-epilepsy-uk.asp
aleez: didn't the docs tell u WHAT kind of epilepsy u have?
cuz normally epilepsy wears off as a child grows older.........but if it doesn't, the chances are increased that it might not go away at all....
[QUOTE]
*Originally posted by NeSCio: *
aleez: didn't the docs tell u WHAT kind of epilepsy u have?
cuz normally epilepsy wears off as a child grows older.........but if it doesn't, the chances are increased that it might not go away at all....
[/QUOTE]
Qrius: Thanks sameen .. even though its hard to stick on sum dieting routine for me.. but i'll definitely go through em n will see wut might b easy for me to follow... :-) .. Thanks a lot.. i really appreciate that.
Rhia: Thanks again gurly.... yeah i've been told to look out for the events that might trigger the Siezure.. unfortunately.. i cant avoid computers cos i m infront of em for more then 8 hours everyday... but to compensate it i do use very hi powered filters n so far its good... i do realize that TV n Very bright lights might be few of the reasons that could trigger the siezure in my case...anyway i do kno as long as m takin the medication regularly, siezures wont happen... so m safe for now.
Nestle: As i already said, the first time i had it back when i was 4-5yrs old doctors told us wut u just said that it might wear off when i grow old.. but i had anuther one when i was 20 ... this mean either it didnt or i hav anuther type epilepsy started at that age...