INS Sometime come thru for medically Needy

ttp://us.rediff.com/channels/news/local/article.asp?subcat=LAW&htmpage=%2Fpublish%2Fnews%2Fnorth+american+news%2Flaw%2Fautism23%2Ehtml&caption=10%2DYear%2DOld+Boy+Wins+Political+As ylum&recid=7411&objid=310243

10-Year-Old Boy Wins Political Asylum

By J.M. SHENOY
2/22/2001

In a decision with far-reaching consequences, immigration officials in
Chicago finally granted political asylum this week to Umair Choudhry,
ending a legal nightmare for his mother, who has been fighting battles
for over three years.

Umair is not a child soldier from South Asia, nor is his family is into
politics.

But his mother, Farah, says that he has been treated as a possessed
person in their native Pakistan. His disease is judged to be God’s
punishment. Back home he will not only continue to be hounded but also
will be confined to a mental institution, she fears.

“I don’t want him to spend his life in a pagalkana (mental asylum),” she
says.

Umair suffers from autism, an incurable brain disorder that prevents
much higher order functioning and causes him to harm himself.

He is often wears a helmet and gloves so he does not scratch himself.
His mouth is also covered so he will not bite himself.

“My son is not an animal,” his mother has said often. “But people in
Pakistan say that an evil spirit makes him hurt himself.”

Neither Farah, nor her other son, 16-year-old Ahsan, have yet received
asylum. But INS officials said their application was under review.

The INS decision disclosed early this week drew the wrath of groups,
such as the Federation of American Immigration Reform, that seek to
restrict immigration.

Leaders of FAIR, through their spokesperson David Ray, suggested that
the INS decision had trivialized refugee issues.

People should not be granted asylum just because their neighbors or
school friends taunt them, Ray said.

FAIR’s executive director Dan Stein told reporters last year, “suddenly
every group seeking to legitimize their cause is filling for asylum.

“The point of asylum is not to provide medical care.”

The Immigration and Naturalization Act says people could seek asylum if
they face persecution or well-founded fear of persecution because of
their race, religion, nationality, membership in a particular social
group or political opinion.

Persecution based on sexual orientation is also considered for refugee
pleas.

But organizations such as Mental Disability Rights International have
been asking for political refugee status for people like Umair Choudhry
because they say many countries do not protect disabled people from
abuses. The advocates call abuses against the disabled a violation of
human rights.

But FAIR and like-minded organizations do not have to worry about
immigrant floodgates thrown open anytime soon.

Immigration authorities cautioned on Thursday that Umair’s legal victory
does not automatically grant asylum to other disabled children.
Asserting that Umair got the asylum because of the persecution of his
disability, Robert Esbrook, INS director in Chicago, said: “He fits the
classic definition of a refugee.”

Farah Choudhry, who came to America four years ago, initially sought
treatment for her son with the help of her immigrant brother. Though
there was no improvement in Umair’s condition, she returned to Pakistan
two years ago to join her husband and other members of the family. But
his condition worsened. And so did the attitude of not only the
neighbors but also some family members. Her own close friends hid their
children when Umair passed by, telling them that the “mad boy” was
approaching.

Since her return and enrollment of Umair at a Chicago school for
severely disabled children, Farah has been depending not only on
relatives and friends but also on the kindness of strangers. The
treatment costs over $20,000 a year—and if the condition worsens, it
could reach $100,000. The New Horizon Center where he studies charges
about $25,000 a year.

But as a citizen, Umair is now entitled to many medical benefits.

This is interesting. I am not commenting upon the INS side of the things, rather on the nature of the medical condition.

I have never come across an autistic person in real life, and hence my knowledge and exposure to this condition is solely based upon what I have read and what I have seen in movies. To my understanding, autistic people are not actually retarded, instead their brain is less focused on normal things and they are exceptionally bright in some other things.

I can imagine, less knoweldgeable people will be uncomfortable around autistic people, especially since an autistic person can involuntary harm himself or the others. Lack of education/knowledge is probably the only thing we can blame.

I have two cousins who were completely retarded (one of them has now died) and they can not even move without assistance. Everyone in our family loves them. I remember my grand parents bringing gifts for them along with rest of us, even though those two were not aware of either the relationships or anything going around them.

I wonder if autistism can be cured or not? Or is it only managed?

Pristine,

assalam aleikum,

Everything you said are absolutely correct.You might have seen many autistic children on T.V on news magazines 60 m,in 20/20/ dateline etc. ec. & movie Rain Man.It is not very clear whether this exactly is Autistic ,& i know only what is in this report above.
Whatever the form of brain condition specifically he has,he probably would not have gotten the rehabilitation for such diasabilities ,which unforunately doesnt have CURE.Very few of chronic diseases do.
Although i'm sure this asyulum cannot be extended to millions of medically needy ppl. in the world,it is good to see,that ridiculous argument given by lawyer type executives"if we do this we have to now do ... for all ..some monumental task"Its nice that we do whatever you can ,& not deprive one person b/c you supposedly is so fair minded that you would do for all the world.
I know many families do support chronic mental or otherwise illnesses.But some of the poorer than middle class ,may break under it .there is a story of spastic girl in calcutta posted on other forum that i'll post to contrast the ultimate fate of children spl. diseased in developing countries & poorer nation.

This recently posted on an Indian forum from an indian news Paper Telegraph India of21 Feb 01

PENURY PUSHES FATHER TO DUMP DEAD DAUGHTER 
 
 
OUR BUREAU
 
Calcutta, Feb. 20 : 
An impoverished father left his 10-year-old dead daughter in a municipal
corporation vat in Bansdroni, south Calcutta, on Monday night. He did
not have the money to pay a doctor for the death certificate, take the
body to the crematorium, or perform the last rites.
The man was detained for interrogation, while Regent Park police started
an unnatural death case, pending a post-mortem report.

Little Mun Mun was born to Tapas and Gita Das of Bansdroni, near Regent
Park, 10 years ago. She was born a spastic, with no control over her
movements. Her brother and sister, born later, were normal.

Mun Mun’s father, a peon at Howrah court, drew a meagre salary, and
could just manage to make ends meet.

But when the girl developed complications relating to rheumatic heart
disorder, he did not have the funds to get her operated upon.

As a result, she was treated at home and, over the past five years, her
condition deteriorated. She was bedridden for the past five months and
finally died on Monday night.

The parents were at a loss over what to do with the body. “We thought of
the costs involved,” recalled Das at the police station. “The doctor’s
certificate, taking her to the burning ghat, the charges there... We had
only Rs 100 with us to buy the next day’s food for our two other
children. If we spent it on cremating Mun Mun, how could we get food for
the others...” he asked, breaking down in front of the interrogators,
who included Gyanwant Singh, additional superintendent of police, South
24- Parganas.

Mun Mun’s mother suggested that the girl’s body be cast into the Adi
Ganga (Tolly’s Nullah), still considered a holy waterway. In the dead of
night, Tapas carried the body in a large jute bag (the 10-year-old’s
body had shrunk due to her illness) and walked along Bansdroni Main Road
towards the Ganga.

With street dogs snapping at his heels, Das was forced to beat a hasty
retreat. He then decided to dump the body in a roadside vat near his
home, presuming that the CMC would take the bag away as garbage.

The next morning, however, residents spotted the limbs of a child in the
bag, which had been rummaged overnight by dogs and cats. They recognised
the body. A crowd gathered at Das’ house and raised a din, thinking that
the girl had been murdered. The police were informed.

“This is a very tragic situation,” said Singh. “The civic authorities
and the government have provisions for cremation of the destitute but
the Das family, apparently, did not know about them. The last rites can
be preformed at only a fraction of the usual cost.”

Several councillors have appealed to the mayor to intervene so that
Tapas Das is not punished for what he did.


Follow Ups:


P

One thing I agree, that there is little knoweldge and even less tolerance in Pakistani culture for retarded and/or autistic kids/people. Worse still that there are not any institutions which diagnose/cure such conditions.

"That" is something where efforts should be directed. Social attitudes take time to amend.

I have a brother in law who is physically and mentally handicapped. Here he moves around freely despite his handicaps, and finds atht most people are helpful and caring. On the other hand he hates going to Pakistan because he tells us that people treat him badly and say that he is mad. While I can agree that those close to the family are usually kind and act lovingly with him, whather here or in Pak, I have seen the effct the negative type of treatment has on him... he finds it hard to express himself but he avoids such prople, and I guess there has got to be just one reason...

[quote]
Originally posted by Shirin:
I have a brother in law who is physically and mentally handicapped. Here he moves around freely despite his handicaps, and finds atht most people are helpful and caring. On the other hand he hates going to Pakistan because he tells us that people treat him badly and say that he is mad. While I can agree that those close to the family are usually kind and act lovingly with him, whather here or in Pak, I have seen the effct the negative type of treatment has on him... he finds it hard to express himself but he avoids such prople, and I guess there has got to be just one reason...
[/quote]

Pristine &shirin,

You are rightthat not only thee is no rehabilitation hospital in Pakistan but the general attitude due to iGNORENCE is almost like rascism,or hatred.In this country & euope it was that way too.but due to leadership in medical community,the attitude now is so great that 91 act of Anmerican with Disability,almosdt makes it rascism to discriminate against disabled ppl.
I think islamically it is very important to treat evey body including handicapped,equally.They are not handicappe for any of there fault just as sickness just stikes even the most piuous ppl.
Just as Imran Khan has done something for Cancer,There shgould be a hospital for rehabilitation in Pakistan from where the management education,&attitude modification can spread .

I find the public use of word "Invalid" extremely offensive and deragatory towards handicaps. Maybe its just me or maybe I see that there are some things which must be politically correct especially in sensitive areas such as this. "Physically Challeged" or "handicap" sounds so much better than "Invalid". grrr....

[quote]
Originally posted by ghalib:
I find the public use of word "Invalid" extremely offensive and deragatory towards handicaps. Maybe its just me or maybe I see that there are some things which must be politically correct especially in sensitive areas such as this. "Physically Challeged" or "handicap" sounds so much better than "Invalid". grrr....
[/quote]

halib,

I think attitude,hatred & perception perpetuated by writers & media is also responsible foe double jeopardy ,in the west & in the easte.
If you read most of the classic stories also re inforce the stereotype of handicapped people as invalid crippled or freak of nature to be freightened,

Quasimodo in Hunch back of Notre dame ,was nothing but suffering fro scoliosis of spine which just became marked due to no treament in those days.Now millions of scoliosis in beutiful glamorous boys & girls are treated by brace & sugery in early growing age to lead normal development & life.
In the past here & europe & still in the developing world ,such disbilities are hard to overcome but made worse by being shun by the society like lepers dprived of normal human touch love & socialization.
We need social sensitivity in accepting harmless deformities for acceptibility as well as train health care professionals therapists ,surgeries to treat them & make themnormal productive society member.

hmmm.. have you seen the ads for the departmental stores in amreeka? Interesting that they now have atleast one person (man or a woman) modeling for clothing line on a wheelchair. One network in NYC (I think WB) has a TV reporter on wheelchair. Its actualy interesting watching him interview people.

[quote]
Originally posted by ghalib:
hmmm.. have you seen the ads for the departmental stores in amreeka? Interesting that they now have atleast one person (man or a woman) modeling for clothing line on a wheelchair. One network in NYC (I think WB) has a TV reporter on wheelchair. Its actualy interesting watching him interview people.
[/quote]

Ghalib,

Thats correct .this reporter for 60 min or something ,is on wheel chair & has travelled all over the world including Iraq ,and is just as good as other like Barbra walter,Ed bradley,Morley scaffer,or any one of the best including Dan Rather.
Everything is ATTITUDE ,both of the disabled &people treating him/her & both needs change paricularly world over .You should look at what the person CAN DO rather han what hey CANNOT DO .Thats a major shipt in the way we value ourself .Pity ,sympathy is the last thing a disbled want yet that is the only we give them instead.!

Woh jo kahte the mere jaan ho tum
khat likhne meine ab unke jaan jate hai

[This message has been edited by FYI (edited March 03, 2001).]

I don't know about Europe, never been there, but I can safely say, that US is the best place for anyone with any kind of physical or mental disability. ADA is really terrific.

As much as I luv Pakistan, the facilities and the social attitudes there need a lot to be desired to care for those members of our community who are challenged.

[This message has been edited by Pristine (edited March 03, 2001).]