Anyone with experience on how to deal with a parent who is extremely unwell?

It is really nerve wracking to see one's parents become extremely unwell and deteriorating rapidly with each and every passing second.

My mother was an extremely proud, ambitious, determined, steadfast woman who rose to the top of her career, profession and single handedly looked after us as a father when my father was travelling outside for work 3 weeks every month. She rose to the top of her gynaecology dept in the govt department she used to work in back home in Pakistan and also did 3-4 private clinics and a few teaching positions as well as keeping an eye on us at home. Working in a Pakistani govt hospital is really hard especially dealing with corrupt PPP politicians who have taken over all govt institutions in Sindh and totally destroyed everything.

While Me and my dad moved to Canada 6-7 years ago, my mother and my baby sister didn't move because she wanted her to do medicine in one of the top medical schools in Pakistan as she believed it would be a much better option rather than doing medicine in medical school in Canada or the US. But trust me, living a split family life has huge ramifications between spouses and no matter how loving and understanding they are, it takes a toll where both spouses feel the other doesn't understand each other or communicate or show patience with each other. Heck the one consequence of me living all by myself mostly on my own in the last 7 years is that I myself don't have the patience to live with people and prefer solitude most of the times.

My mother finally had enough and retired for good a year ago once my sister finished medical school in Pakistan and she finally wanted all of us to start living as a family again. She was unhappy about living in Canada knowing that living in the West will be a totally different ball game to living in the comforts of Pakistan but she was like its not an option. Unfortunately things have just gotten worse, a year and a half ago my mother was diagnosed with Parkinson's but it is incredibly shocking to see how rapidly the whole symptoms have spread. It's gotten so bad now, she can no longer eat properly, she can't walk unassisted, she feels dizzy and hazy a lot, can't move her neck and her speech has become slurred.

My dad travels a lot, three weeks in a month for work, I work for an accounting firm and my hours are very brutal where I am either working 10-12 hours plus a day or studying for exams. My baby sister quite her job recently so that she could focus on her USMLE exams in the US and while she is at home most of the times to take care of our mom, she is getting married by the summer of next year and will not be around for ever.

It is just frightening to see how much help my mother needs. My daadi is 86 years old where she has health issues of her own but even she commented that atleast I can lift things and eat properly and efficiently if I want too. We have been pressing mom to agree to let us hire a helper who can help her out with doing house chores and a caregiver but she is so far refusing.

Although something like this should not be said for ones parents but it is proving to be very impossible having to live in the West and to take care of someone who needs full time care and both me and my dad can't quit our jobs either. Last night my dad told my mom pointblank that she has got to accept help from a full time care giver. My mom is still refusing and even emotionally blackmailed that if we impose a caregiver on her then she would rather go back home to Pakistan where the cost of hiring help is much cheaper. Anyways I thought I would ask people over here if they have had any experience or issues with this especially in the West. Me and my dad have tried our best, but practically speaking we can only be able to watch her full time over the weekends but it is not possible forever. My dad was in favour of telling the rest of the family members about her deteriorating condition so that people would have a better understanding and would try to help make her comfortable as much as possible but my mom was against it saying that people will spread things and any future parent or girl they try to pursue for me will be put off by an unwell mother in law.

Looking forward to people sharing their opinions, experiences and practical suggestions

Instead of a full-time caretaker, would your mom be open to one that provides part-time care until you and your dad return from your respective jobs in the evening and can therefore spend time with her/check up on her....? I hope Allah grants her shifa and makes things easier for her and your family. Amin.

I understand the need for solitude. But as frustrating as this is for all family members, it is far worse/painful for the one who is suffering from the illness on every level (physical, emotional, mental). The hassles and hindrances that your mother's condition has placed on everyone else pales in comparison to her own daily internal struggle/fight. With that said, please try to be there for her as much as you can. Give her as much love and emotional support as you can because the best of professional caretakers cannot provide her with that which one seeks (and can only get) from their family and loved ones.

What a difficult situation for you to be in. You must feel so helpless and frustrated. My heart goes out to you and your family.

Some suggestions, based on professional experience:
1. It will take time for your mother to accept help. She sounds amazing and has achieved so much in her life. It?s going to be hard for her to accept that not only can she no longer be the high flyer she is, but that she needs help with basic tasks. Anyone that knows the general progression of Parkinson?s Disease (and your mother probably knows it a bit too much, with her background) would feel broken by the prospect.
So, as hard as it may be, give her time. Gently offer solutions (ie hired help), but it won?t matter until she can accept that she needs the help. She potentially is in the denial stage (stages of bereavement/loss), she has to get through all the other stages before acceptance.

She probably uses the ?I?ll go back to Pakistan? as an expression of frustration - if she doesn?t want your relatives to even know how unwell she is, she wouldn?t want to be amongst them. (For what it?s worth, any potential rishta/girl that may reject anyone based on an unwell MIL isn?t worth your time anyway) Don?t let her proclamations upset you. She is hurting and grieving the loss of her life/independence/identity/pride/dignity. She needs love, support, and time.

I am not familiar with the Canadian health and social care system. I can tell you about equivalent for us in the UK, and maybe there?s something similar there? Approach your general practitioner/family physician, they may be able to help set up some support - in the UK, patients may get ?packages of care? which involves support from carers that can come in at x number of times a day, to support different activities (getting up/dressing/eating/medications/adapting the house to make it safer/more practical etc). Your mum may be open to having help like once a day for now, then build it up with time?

  1. Look after yourself, and each other. Being a carer is hard - physically and emotionally. If your sister is doing the bulk of caring, make sure she has an evening or two ?off? (revising for USMLE does not count as time off!) to recharge and refresh. Make sure you all eat and sleep well. Ensure you all have time away every now and then - a movie, a meal, anything! There are a number of organisations and support groups in the UK for supporting carers - I would highly recommend looking up similar ones for where you are.

Lastly, it?s important to have an outlet for emotions you?re bound to go through. Think about who you can all talk to - each other/friends/support groups/anonymous places like online fora, find something that works and use it.

Praying for things to get easier for you and your family.

Yes @UFC2015 I am envious of you because you have an opportunity to serve your Mother! Whatever you do for your dear Mother,

I know you will do out of Love! …and Kindness to your Mother begets Allah’s Kindness!

Our Holy Prophet May peace and Blessings be upon him once told Hazrat Ali Radi Allah unho and Hazrat Umar Radi Allah unho

both of them to go to one person called Owais from the tribe of Qarni!

and ask Owais to make dua for them! mind you these two are The Elite from amoung the Sahaba

So why would our Holy Prophet ask them two to do that? even though Hazrat Owais Qarni had never met Rasol Allah PBUH!

because Owais was taking care of his sick Mother!

you can hear the whole story as narrated by Moulana Tariq Jameel:

2 Likes

Actually my parents have not revealed or disclosed to us the kids and family members about what she is suffering from. But we are using our own judgement and looking at the symptoms, it is obvious that this is Parkinson's. I have discussed her case with a few doctor friends of mine and they are off the opinion that usually Parkinson cases do not show such a rapid decline and deterioration and that the fact she has declined so rapidly in the space of a year indicates that this could be a far more serious neurological disease.

My parents are both doctors therefore they deal with the issues as far as which doctors to see, which medications to take or not to take. My biggest frustration with the Canadian Health Care System is the annoying fact that it can take months and months in order to get referred to a specialist from your GP. I remember a year and a half ago when i had my Sciatica which was almost diagnosed at the end of July 2017, the doctor immediately sped up my MRI referral and i was told that the earliest possible appointment i could get was on Nov 19, 2017. Luckily i was in Pakistan after that and i managed to get all the appointments and physiotherapy sessions i needed. Anyways, my parents especially my dad and the doctors they are consulting know best with regards to the medication they are taking. I believe my mother complained that the medication she was given at one point made her drowsy, slow, dizzy but now she realizes if she doesn't take them, the symptoms will accelerate further.

As far as help is concerned, i have tried to contact people to come over and help her out with household chores, laundry, cooking, general cleaning and being a caregiver but my mom is very hessitant to avail it because she just does not like the idea of dependancy and the fact it is more expensive here in Canada in comparison to Pakistan. Getting someone from Pakistan to Canada, not sure if that is possible or practical.

My mother, father and sister just recently went to Pakistan for 2 weeks for my baby sister's dholki and while my mother had the same symptoms there, she felt a lot more at ease, peace back home in Khi because of the fact that there was so much help available i.e. Cook, Driver, Maid, Cleaner and even a massage therapist who came over. My dad actually even point blank told her that there is no way she can live in the west in this state.

Me and my dad get critizied a lot by people, i.e. whoever i have told this story anonymously too but the fact is my dad is a workaholic, the idea of retirement scares him, he cannot sit idle, he also does not want to be dependent on others and he has seen many times people actually suffer health issues and problems when they retire because they stop being physically active, therefore i suspect he will continue to work as long as his heart, health and will permits him too.

For me, i need another years worth of experience and need to clear one final exam before i get my CPA designation. Can i realistically quit my job, career at my stage in life to be a caregiver?

I can tell you about my Chacha who is an aero space engineer in the US and he has had to take care of a full blown Autistic Kid his entire life and the only way he was able to do so was by launching his own engineering consulting firm which he operates out of his home and which makes it easier for him to be there for his kid 24/7 while also being able to earn a living. But how many people have this luxury and comfort of being in a profession which allows you to work out of your home?

I agree she is suffering from depression. Hopefully my folks will consider the right course of action.

A lot of prayers for your mom. You can try bring her to US if its possible. Or may be contact someone in India heard the docs are very good there.

As for you its never going to be easy but thats the challenge. Make it your top priority and inshallah you'll get eternal reward.

Most Desi will like to spend the last year's of their life back in their Homeland and be buried there

As corrosive as it sounds it will be better off her to remain in Pakistan and have people taking care of her and the family visiting her once in a while

Will be good for her emotionally and mentally

Just saying

But then family knows better

Take care

Mom and Dad told me off for trying to be inquisitive about my mother's health and condition for a while. Mom and Dad finally came clean today and admitted the Parkinson's diagnosis one and a and how it was progressing at a much faster rate than they initially expected it would. And they both broke down really badly while telling me "These are very testing and trying times for us". Then my mom broke down "I have lived a very honest, Islamic life and even I get very upset as to why did something like this happen to me at a relatively younger age of 60".

Then my mom tearfully went like "I know that at times I am not very easy to be with during this time, I can't communicate as well as I used too or physically do the things I used too, you know how independent, proud I used to be and these are very difficult times for me and I don't need you guys to make it worse for me. I now truly realize how Allah can take everything away from you in a heartbeat better than any point in my life. I thought i dreamt I would relax in my retirement and play with my grand kids and help my kids raise them"

Then my folks were like we don't want you to worry or stress about this. My dad was like this is my primary responsibility, you dont worry about this 24/7. You need to focus on your life and settling down professionally and personally. I have been deeply shook at seeing them in this state. First priority is to get my mom caregiving help around the house and to make her feel as welcome as possible. I have never been as close to her compared to my baby sister but I am going to do whatever I can to make things easy for her.

Next I need to figure out what I will and can do in the long run in the accounting field. It was always a goal to either run and start my own practice from home in Canada or if I had to move to Pakistan then to get into teaching in Pakistan in high schools, universities and pvt tuition centres. But just doing something which allows me to earn decently and allows me to be as close to my folks as possible.

If you mother was happier living in Pakistan with all the domestic help & care takers then you guys should consider that option. Sometimes moving to new places don't suit one's temperament and it affects their health and mind whether they realise it or not. You guys and especially your mom should think where she feels happiest the most. If in Pakistan (Most people are happier and comfortable living in the places they were bor? and grew up) then she must consider moving back. It would be best is there is also a family member accompanying her. Maybe your father must shift in business to Pakistan or travel from Pakistan whenever needed. It will be best if he is around her in Pakistan than the girls.

Don't count much on pakistan in terms of teaching positions in school/universities.....

Can't your dad move to Pakistan? If he is a doctor - it shouldn't be very difficult......that way your mom will have semblance of family and easily accessible care.

Do all the people suggesting you let your mom return to Pakistan even realize that's it's a third world country without a constant supply of electricity and water or even an emergency service as good as 911.

I spoke to my mom regarding my mother going back to Pakistan and getting full time care there. According to him the quality of caregiving help she will receive in Pakistan is poor and the medication that she needs is not available in Pakistan.

I am not convinced on either reason to be honest. I refuse to believe that Parkinson's medication like LovaDopa, Cardiodopa and blood pressure and blood flow increase to the brain medication is not available in Pakistan. Perhaps some doctors over here can shed light on this

Not a doc but do know the medical service/product is kinda messed up

fake / tampered medicine are also sold in pharmacy as genuine products

brain related diseases are also considered not a disease and jadoo , magic etc and norm for old age

just my opinion

not sure of the current situation

Prayers for your family bro!. Especially your mother.